International Registry for Toxic Epidermal Necrolysis (IRTEN)

Welcome to the International Registry for Toxic Epidermal Necrolysis (IRTEN)

 

The International Registry for Toxic Epidermal Necrolysis (IRTEN) is an international, observational web-based registry for prospective anonymized collection of clinical data and biological samples in individuals suffering of SJS/TEN.

 

The registry data should lead to a better understanding SJS/TEN including its epidemiology, clinical characteristics including outcome, short- and long-term complications, real-time data concerning causative drugs, and therapy, with the ultimate aim of fostering improved patient care. 

 

Real time count of SJS/TEN cases in IRTEN:

 

96

SJS/TEN Biobank

Information for study centers

Apply for collaboration

Founding Centers

Collaborating Centers

620 uksh

In Cooperation with:

 

European reference Network (ERN)-Skin is an EU-Funded initiative to improve the quality of life of European patients by offering them highly specialised healthcare and support in their daily care while enabling them to remain in their home environment (https://ern-skin.eu).